A rapid review of community engagement and informed consent processes for adaptive platform trials and alternative design trials for public health emergencies
by Alun Davies et al.The practicality and sustainability of a community advisory board at a large medical research unit on the Thai-Myanmar border
by Khin Maung Lwin, Thomas J Peto, Nicholas J White, Nicholas P.J. Day, Francois Nosten, mparker, phaikyeongCommunity engagement is increasingly promoted to strengthen the ethics of medical research in low-income countries. One strategy is to use community advisory boards (CABs): semi-independent groups that can potentially safeguard the rights of study participants and help improve research. However, there is little published on the experience of operating and sustaining CABs.
Clinical trials in India continue to be in the news, unfortunately a fair bit being negative coverage.
This bibliography is a work in progress and is regularly revised. We are currently updating it to link to any listed papers that are available via open access. If there are papers we're missing, or if you have other comments, please let us know by writing to info@globalhealthbioethics.org.
Consent and Community Engagement - A Draft Bibliography
by Editorial TeamUPDATED: August 2011. This bibliography primarily lists references for papers published on the topic of informed consent (especially as it relates to empirical studies carried out in developing countries), and the topic of community engagement (again, focusing on studies carried out in developing countries). We would like to keep this bibliography comprehensive and updated. Please let us know if we are missing any papers on these topics.
Report from Workshop on Consent and Community Engagment in Health Research: Reviewing and Developing Research and Practice, Kilifi, Kenya Monday 28th February – Thursday 3rd March, 2011
by Consent to and Community Engagement in Health Research Steering CommitteeThis is the Report from the "Consent to and Community Engagement in Health Research" workshop, which took place between 28 Feb - 03 Mar 2011 in Kilifi, Kenya. The workshop built upon an emerging collaboration between the Ethox Centre in Oxford, the Social and Behavioural Research Group at the Wellcome-KEMRI Unit in Kilifi, the Liverpool School of Tropical Medicine and the Mahidol - Oxford Tropical Medicine Research Unit in Thailand.